Use of disease assessment tools to increase the value of case reports on Susac syndrome: two case reports

Table 7 Serial SuSx Scores

Year 1	0	2	4	5	6	7	8	14	17	21	27	37	42
Patient 2
Susac symptoms scores:
Neurologic subscore
Mean score (0–100)**	64.6	32.3	22.7	81.0	46.9	42.3	40.4	32.8	26.5	20.4	18.1	21.2	23.5
Sub total	775*	420	295	810*	610	550	525	427	345	265	235	285	305
Ear subscore
score (0–100)	0	0	0	0	0	20	32	18	18	18	18	18	18
Sub total	0	0	0	0	0	100	160	90	90	90	90	90	90
Eye subscore
Mean score (0–100)**	0	0	0	0	0	0	0	0	0	0	0	0	0
Sub total	0	0	0	0	0	0	0	0	0	0	0	0	0
Total symptoms score	775*	420	295	810*	610	650	685	517	435	355	325	375	395
Difficulty performing ADL (0–100)	80	25	0	90	10	60	60	20	10	5	5	5	10
Difficulty performing job (0–100)	100	90	80	100	95	90	90	60	65	50	50	50	65
Diminished QOL (0–100)	100	65	40	100	90	85	80	65	50	50	40	40	50
Total score for above 3	280	180	120	290	195	235	230	145	125	105	95	95	125
Oxford Scale (0–6)	5	5	4	6	5	5	5	5	5	5	5	5	5
Overall QOL (0–100)	0	30	60	0	20	15	20	35	45	50	60	60	50
Disease activity:
Brain (0–100)	100	75	25	100	30	75	40	0	0	0	0	0	0
Ears (0–100)	0	0	0	0	0	50	40	0	0	0	0	0	0
Eyes (0–100)	0	0	0	0	0	0	0	0	0	0	0	0	0

Week Weeks after onset of treatment, ADL Activities of daily living, QOL Quality of life
*Means that one or more items could not be scored; so the subtotal is at least as high as shown
**Represents the mean score for those items that could be scored

ISSN: 1752-1947