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Table 6 SuS disease damage score at last visit

From: Use of disease assessment tools to increase the value of case reports on Susac syndrome: two case reports

 

Patient 1

Patient 2

Neurologic damage subscore (0–1700)*:

12 (13)**

325

Decreased mental alertness (0–100)

2 (2)

20

Slow thought processing (0–100)

2 (3)

10

Memory impairment (0–100)

0 (0)

20

Intellectual impairment

  

Affecting school/work (0–100)

4 (3)

50

Decreased executive function (0–100)

0 (0)

65

Emotional lability (0–100)

0 (0)

30

Personality change (0–100)

0 (0)

25

Confusion/odd behavior (0–100)

0 (0)

25

Poor concentration (0–100)

4 (5)

50

Unsteady gait (0–100)

0 (0)

0

Spasticity (0–100)

0 (0)

0

Gross motor impairment (0–100)

0 (0)

10

Fine motor impairment (0–100)

0 (0)

10

Hemiparesis (0–100)

0 (0)

10

Neurogenic bladder (0–100)

0 (0)

0

Neurogenic bowel (0–100)

0 (0)

0

Slurred speech (0–100)

0 (0)

0

Inner ear damage subscore (0–600):

0 (0)

120

Hearing loss (H/L) R (0–100)

0 (0)

40

Hearing loss L (0–100)

0 (0)

50

Tinnitus R (0–100)

0 (0)

0

Tinnitus L (0–100)

0 (0)

0

Vertigo (0–100)

0 (0)

0

H/L adversely affecting QOL (0–100)

0 (0)

30

Eye damage subscore (0–500):

0 (0)

0

Permanent blind spot R (0–100)

0 (0)

0

Permanent blind spot L (0–100)

0 (0)

0

Constricted peripheral vision R (0–100)

0 (0)

0

Constricted peripheral vision L (0–100)

0 (0)

0

Visual damage affecting QOL

0 (0)

0

Total disease damage score (0–2800):

12 (13)

445

Global assessment of disease damage (0–100):

2 (5)

60

  1. Last visit was at 23 months for case 1 and 21 months for case 2
  2. *The second number in all parentheses represents the worst possible score
  3. ** The attending physician’s scores for patient 1 are in parentheses