Year 1 | Week: | 25 | 26 | 29 | 32 | 33 | 34 | 35 | 36 | 38 | 41 | 47 | 52 | |
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
Patient 1 | ||||||||||||||
Susac symptoms scores: | ||||||||||||||
Neurologic subscore | ||||||||||||||
Mean score (0–100) | 1.1 | 0.3 | 2.5 | 1.6 | 2.5 | 2.7 | 2.3 | 2.9 | 3 | 2 | 1.8 | 1.8 | ||
Sub total | 15 | 4 | 32 | 21 | 33 | 35 | 30 | 38 | 39 | 26 | 24 | 24 | ||
Ear subscore | ||||||||||||||
Mean score (0–100) | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | ||
Sub total | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | ||
Eye subscore | ||||||||||||||
Mean Score (0–100) | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | ||
Sub total | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | ||
Total symptoms score | 15 | 4 | 32 | 21 | 33 | 35 | 30 | 38 | 39 | 26 | 24 | 24 | ||
Difficulty performing ADL (0–100) | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | ||
Difficulty performing job (0–100) | 6 | 6 | 12 | 10 | 15 | 15 | 15 | 15 | 15 | 15 | 13 | 12 | ||
Diminished QOL (0–100) | 10 | 8 | 15 | 15 | 15 | 15 | 13 | 13 | 12 | 12 | 12 | 12 | ||
Total score for above 3 | 16 | 14 | 27 | 25 | 30 | 30 | 28 | 28 | 27 | 27 | 25 | 24 | ||
Oxford scale (0–6) | 3 | 3 | 3 | 3 | 3 | 3 | 3 | 3 | 3 | 3 | ||||
Overall QOL | 91 | 91 | 89 | 75 | 75 | 75 | 78 | 79 | 79 | 80 | 80 | 80 | ||
Disease activity: | ||||||||||||||
Brain (0–100) | 0 | 0 | 0 | 0 | ? | ? | ? | ? | 0 | ? | ? | ? | ||
Ears (0–100) | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | ||
Eyes (0–100) | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 | 0 |