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Table 3 Serial SuSx Scores

From: Use of disease assessment tools to increase the value of case reports on Susac syndrome: two case reports

 

Year 1

Week:

25

26

29

32

33

34

35

36

38

41

47

52

Patient 1

Susac symptoms scores:

Neurologic subscore

 Mean score (0–100)

  

1.1

0.3

2.5

1.6

2.5

2.7

2.3

2.9

3

2

1.8

1.8

 Sub total

  

15

4

32

21

33

35

30

38

39

26

24

24

Ear subscore

 Mean score (0–100)

  

0

0

0

0

0

0

0

0

0

0

0

0

 Sub total

  

0

0

0

0

0

0

0

0

0

0

0

0

Eye subscore

 Mean Score (0–100)

  

0

0

0

0

0

0

0

0

0

0

0

0

 Sub total

  

0

0

0

0

0

0

0

0

0

0

0

0

Total symptoms score

  

15

4

32

21

33

35

30

38

39

26

24

24

Difficulty performing ADL (0–100)

  

0

0

0

0

0

0

0

0

0

0

0

0

Difficulty performing job (0–100)

  

6

6

12

10

15

15

15

15

15

15

13

12

Diminished QOL (0–100)

  

10

8

15

15

15

15

13

13

12

12

12

12

Total score for above 3

  

16

14

27

25

30

30

28

28

27

27

25

24

Oxford scale (0–6)

    

3

3

3

3

3

3

3

3

3

3

Overall QOL

  

91

91

89

75

75

75

78

79

79

80

80

80

Disease activity:

 Brain (0–100)

  

0

0

0

0

?

?

?

?

0

?

?

?

 Ears (0–100)

  

0

0

0

0

0

0

0

0

0

0

0

0

 Eyes (0–100)

  

0

0

0

0

0

0

0

0

0

0

0

0

  1. ADL Activities of daily living, QOL Quality of life