Use of disease assessment tools to increase the value of case reports on Susac syndrome: two case reports

Table 2 Serial SuSx Scores

	12	13	14	15	16	17	18	19	20	21	22	23
Patient 1
Susac symptoms scores:
Neurologic subscore
Mean score (0–100)	4.2	3.9	3.7	2.6	1.8	1.5	1.2	0.5	0.4	0.5	0.4	0.3
Sub total	54	51	48	34	23	19	16	7	5	6	5	4
Ear subscore
Mean score (0–100)	0	0	0	0	0	0	0	0	0	0	0	0
Sub total	0	0	0	0	0	0	0	0	0	0	0	0
Eye subscore
Mean score (0–100)	1.3	1	0.75	0.5	0	0	0	0	0	0	0	0
Sub total	5	4	3	2	0	0	0	0	0	0	0	0
Total symptoms score	59	55	51	36	23	19	16	7	5	6	5	4
Difficulty performing ADL (0–100)	2	2	2	2	2	2	2	2	2	2	0	0
Difficulty performing job (0–100)	14	14	14	10	10	10	8	5	5	5	4	4
Diminished QOL (0–100)	27	25	23	20	20	16	15	13	11	10	8	8
Total score for the above 3 items	43	41	39	32	32	28	25	20	18	17	12	12
Oxford Scale (0–6) Overall QOL	90	90	89	91	92	91	90	91	90	90	90	90
Disease activity:
Brain (0–100)	2	2	0	0	0	0	0	0	0	0	0	0
Ears (0–100)	0	0	0	0	0	0	0	0	0	0	0	0
Eyes (0–100)	8	0	0	0	0	0	0	0	0	0	0	0

ISSN: 1752-1947